Friday, October 5, 2012

Down Syndrome Awareness Month

October is National Down syndrome Awareness Month! If you click in any of my friends blogs, there will be tons of folks doing 31 for 21, or a post a day for Down syndrome. Honestly, we are doing well to have two posts in one week here. LOL! I am going to leave you with some videos. Get out the tissues! And this...This is a traveling gallery that is going to be turned into a coffee table book. We know a few of these beautiful faces! This one too!

Tuesday, October 2, 2012

We're still here!

I'm just such a bad blogger since FB has come around. I NEED to get better at this.

Lots of stuff going on, so here is the run down:

We have moved. We all like the new house, although I am STILL unpacking. Getting rid of tons of stuff. It's amazing how much we accumulate, but even more amazing how much Christooher has accumulated!  Holy cow!  There is no mistaking, this is HIS house.

We are still going to Chicago for more of our docs., and therapy once a month.  I finally got smart with the doctors appointments, and scheduled a week long block of them. The only thing is, there were too many for one week.  We went in September and will go again in October.

Christopher is progressing quickly. Not sure what has changed, but he has gained 12 lbs since  December. That may not seem like much, but for a kid who hovered between 21 and 24 lbs for 6 1/2 years, that's a HUGE deal. He's a whopping 33 1/2 lbs now!

He's babbling a lot, with some words mixed in. Some he still says regularly, others are new or he repeats once and never says again.  He's also moving a LOT more.  Eight years in and we are finally having to baby proof. :)  He's working on crawling up the stairs, although he's not too thrilled about coming back down again. He would play on the stairs all day long if we let him. He's sitting by himself all the time. He hasnt been in his little chair for months. He's trying to pull up on the entertainment system and the couch. Problem is, he is sooooo long. He got himself stuck in his bed the other day. It is a modified hospital bed, and he fell through the gap created between the end of the mattress and the footboard when the foot of the bed is raised. I heard a thump, and went in to find him hanging by his neck in the opening. It was pretty scary.  We called the company who made the bed and they sent us a new one for free! (I will do a post on that later.)

Otherwise, we are still fighting the state over the waiver. It is even more scary with the election. If you educate yourself about nothing else with this election, educate yourself with the facts about how the vote will impace healthcare. Be afraid.....very afraid!

I think that is about it for now. Hope all of our bloggy friends are doing well.  I read everybody's blogs, just hit or miss whether Blogger will let me comment or not. :(